Support and advocacy for Acoustic Neuroma (Vestibular Schwannoma) and hearing loss (especially single sided deafness)


You Aren’t the Same After Brain Surgery

I have heard it, and I have had many brain tumor warriors tell me that someone has said to them, “You aren’t the same after brain surgery.”

While technically true, this is not a helpful phrase. It is scary and daunting to hear when facing an upcoming brain surgery. Sure, I am not the same person I was before my brain surgery. But I am also not the same person I was before I got married, became a mom, or lived through a pandemic. Life is change. We are constantly changing and different from the person we were previously. And that’s ok. That’s probably even good or great (really, a world full of unchanging toddlers is a terrifying idea).

So, we aren’t the same. Okay. But that doesn’t mean we are necessarily worse.

I learned a lot and grew as a person throughout my brain tumor journey. I have perfectionist and type A tendencies, and a brain tumor diagnosis really helped give me perspective on what does and does not actually matter. I had to learn how to let things go, and to really think through what actually needed me and what someone else could handle while I was recovering and healing. I forcibly could not sweat the small stuff, and so I learned how to live my life in a different fashion. I especially learned to not let my work consume my entire life.

My brain tumor greatly affected my my balance. I had to do vestibular physical therapy after treatment. Afterwards I realized that my balance will always be something I need to work at and keep practicing. So I chose to really focus and push on balance challenging exercises to make sure I keep my balance in as good of condition as possible. Because of that, I am now doing very fun and exciting exercises such as paddleboard yoga and aerial yoga that I probably wouldn’t have believed I could do back in the time period before my diagnosis.

I also decided to use my brain tumor experience as a way to help and connect with other brain tumor warriors. I wanted to take this awful experience and turn it into something good. Because of my volunteering with the Acoustic Neuroma Association I have met so many amazing and wonderful people, and now I know awesome brain tumor survivors around the globe!

They say the only person who likes change is a baby in a wet diaper. No one wants a brain tumor diagnosis or a brain surgery. I am not going to lie, there is a whole lot of unpleasant on that journey. But you can still be a wonderful version of you, hopefully with a lot less tumor, on the other side.



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About Me

Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.