vestibular schwannoma
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It’s Never *Just* a Brain Tumor
It feels like getting a life changing diagnosis like an acoustic neuroma brain tumor should mean you get a pass on other drama in your life. Unfortunately, that is just not the case. It can be a lot to manage life, brain tumor diagnosis, and fight through the health care system all at once. Continue reading
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Podcast Episode 10: Katy’s Story
Katy was diagnosed with a 4cm acoustic neuroma in college, experienced regrowth, and later learned she actually has mosaic neurofibromatosis type 2. Through all of this, Katy finds a way to retain her sense of joy and calling and uses her experience to increase accessibility for others. Continue reading
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Decision Fatigue and Acoustic Neuroma Treatment
Normal, every day decisions can be draining. Choosing treatment for a brain tumor can turn that decision fatigue up to eleven. Continue reading
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Balance at the Beach
Is it obvious that a day at the beach is a huge balance challenge? I did not think of that in advance- but my vestibular system promptly told me it was working hard on the beach. Continue reading
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Podcast Episode 9: Betty’s Story
Betty has an incredible acoustic neuroma story. She found her tumor through her dental concerns. She proceeded to have radiation for her 2.2 cm tumor and retain all her hearing, which was very important for her career as a musician. Continue reading
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Representation Matters: Disability Pride Month
Holding my Disability Pride flag high, I am celebrating this Disability Pride month by focusing on the importance of representation. Continue reading
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Podcast Episode 8: Kim’s Story
In this episode Kim shares about her complicated treatment journey for her acoustic neuroma. Kim had a larger tumor, some unusual complications, and experienced regrowth of her tumor after surgery. Despite all this, Kim’s positive energy really shines through as she describes navigating all of these challenges. Continue reading
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My CSF Leak Story (Cerebrospinal Fluid Leak)
I experienced a CSF leak in the days after my acoustic neuroma brain tumor surgery. Content warning- it was a traumatic experience for me. Continue reading
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Grocery Shopping is a Balance Workout
It’s common to struggle with vestibular issues in grocery stores if you have an acoustic neuroma (or after treatment for an acoustic neuroma) Have you wondered why a supermarket is so hard on your balance? Continue reading
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Podcast Episode 7: Sean and Chris
In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 