vestibular schwannoma
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Podcast Episode 7: Sean and Chris
In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
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Please Don’t Correct Me On My Own Experience
Sometimes well meaning people in your life want to contradict how you describe your abilities and struggles. While this is well intentioned, as a communication practice it can be quite harmful. Continue reading
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Wordfinding and Acoustic Neuromas
It can be really frustrating to struggle to locate the word you want to say. Occassional bouts of wordfinding difficulties are really common in the acoustic neuroma experience. Continue reading
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Literally Going Gray in May: Gray Hair and Brain Surgery
Gray May brings awareness to brain tumors and those impacted by them. Sharing my story of graying hair from my brain surgery seems an appropriate way to celebrate this month. Continue reading
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Podcast Episode 6: DJ’s Story
In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him… Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Podcast Episode 5: Maggie’s Story
Maggie decided on retrosigmoid surgery to treat her acoustic neuroma. Her hearing journey has been unusual, and she has struggled with balance issues as well as vision problems. Nonetheless, she is leading a very active life including canoeing and wood chopping. Continue reading
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Small but Annoying Acoustic Neuroma Side Effects
I want to recognize some of the smaller side effects that people with acoustic neuromas may cope with. Some of these may seem odd or be unexpected from what a doctor shares, but they are a part of folks’ stories. Continue reading
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Podcast Episode 4: Zoe’s Story
In this episode Zoe shares the story of her diagnosis and why she chose radiation for her treatment. As a musician, Zoe brings some unique perspectives to her experience of hearing loss. Continue reading
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Balance Problems and Shoes
It may surprise you to learn that shoes play a large role in daily balance. Choosing the right shoes can help optimize how much energy you spend on balance. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 