vestibular schwannoma
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Podcast Episode 6: DJ’s Story
In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him… Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Podcast Episode 5: Maggie’s Story
Maggie decided on retrosigmoid surgery to treat her acoustic neuroma. Her hearing journey has been unusual, and she has struggled with balance issues as well as vision problems. Nonetheless, she is leading a very active life including canoeing and wood chopping. Continue reading
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Small but Annoying Acoustic Neuroma Side Effects
I want to recognize some of the smaller side effects that people with acoustic neuromas may cope with. Some of these may seem odd or be unexpected from what a doctor shares, but they are a part of folks’ stories. Continue reading
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Podcast Episode 4: Zoe’s Story
In this episode Zoe shares the story of her diagnosis and why she chose radiation for her treatment. As a musician, Zoe brings some unique perspectives to her experience of hearing loss. Continue reading
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Balance Problems and Shoes
It may surprise you to learn that shoes play a large role in daily balance. Choosing the right shoes can help optimize how much energy you spend on balance. Continue reading
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When Your Body Initiates Self Destruct Mode
I have struggled with feeling betrayed by my body in the wake of my acoustic neuroma diagnosis. Some days it can feel like all my body does is let me down. I have worked on different mindsets to combat these feelings. Continue reading
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Adventures in Hearing Loss & Theatre
I’ve had a lifelong love of theatre, but hearing loss has added some complications. After trying many options and some advocacy, I am grateful for the opportunity to enjoy theatre with captions. Continue reading
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Podcast Episode 3: Stacy’s Story
Stacy noticed that her hearing wasn’t working correctly while pregnant. She shares her story of navigating an acoustic neuroma diagnosis and subsequent brain surgery while juggling motherhood with a young child and a newborn. Continue reading
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Why I Volunteer
I have been thinking about what volunteering brings into my life, and my gratitude for this community. *Spoiler alert* I volunteer for you. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 