brain-tumor
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Podcast Episode 7: Sean and Chris
In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
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Please Don’t Correct Me On My Own Experience
Sometimes well meaning people in your life want to contradict how you describe your abilities and struggles. While this is well intentioned, as a communication practice it can be quite harmful. Continue reading
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Wordfinding and Acoustic Neuromas
It can be really frustrating to struggle to locate the word you want to say. Occassional bouts of wordfinding difficulties are really common in the acoustic neuroma experience. Continue reading
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Literally Going Gray in May: Gray Hair and Brain Surgery
Gray May brings awareness to brain tumors and those impacted by them. Sharing my story of graying hair from my brain surgery seems an appropriate way to celebrate this month. Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Small but Annoying Acoustic Neuroma Side Effects
I want to recognize some of the smaller side effects that people with acoustic neuromas may cope with. Some of these may seem odd or be unexpected from what a doctor shares, but they are a part of folks’ stories. Continue reading
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When Your Body Initiates Self Destruct Mode
I have struggled with feeling betrayed by my body in the wake of my acoustic neuroma diagnosis. Some days it can feel like all my body does is let me down. I have worked on different mindsets to combat these feelings. Continue reading
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Podcast Episode 3: Stacy’s Story
Stacy noticed that her hearing wasn’t working correctly while pregnant. She shares her story of navigating an acoustic neuroma diagnosis and subsequent brain surgery while juggling motherhood with a young child and a newborn. Continue reading
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My Children are Advocates
I have been surprised and amazed at how my children have become advocates for me and for the hearing loss community. I am so grateful for their support and their efforts to break down hearing loss stigma. Continue reading
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Podcast Episode 2: Ramiz’s Story
Ramiz’s story of his acoustic neuroma diagnosis and treatment is cinema worthy. Regardless, Ramiz overcame all those obstacles to live a full life and can now look back and share the story of those tumultuous times. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 