Both brain tumors and hearing loss can be isolating. It’s so hard when you feel like the people in your life can’t even begin to understand your experience. Just hearing that someone else has shared a similar experience can be extremely healing. Many times, people who have walked the path before you have found elegant solutions that you can utilize. Becoming more involved in the acoustic neuroma community and the hearing loss community has been extremely beneficial for me. There is something special about connecting with people who get it. So I wanted to share some of my favorite places on the internet where I have found these wonderful connection points.

Wonderful Associations:

• Acoustic Neuroma Association anausa.org (USA)
• Australian Acoustic Neuroma Association https://www.anaa.org.au/
• Canadian Acoustic Neuroma Association https://www.anac.ca/
• British Acoustic Neuroma Association https://www.bana-uk.com/

• Hearing Loss Association of American (they have local chapters too) hearingloss.org
• Hearing Health Foundation hearinghealthfoundation.org
• Hearing Health & Technology Matters https://hearinghealthmatters.org

Favorite Blogs:

• Carly Sygrove’s blogs: https://www.carlysygrove.com/blog https://myhearinglossstory.com/
• Lip Reading Mom https://lipreadingmom.com/
• Shari Eberts https://livingwithhearingloss.com/

Facebook Groups:

• Acoustic Neuroma Association Young Adult Support Group https://www.facebook.com/groups/ANAYoungAdults
• My Hearing Loss Story- this community has many kinds of hearing loss but a large percentage is people with single sided hearing loss, as is the leader, Carly Sygrove. https://www.facebook.com/groups/1422427341250724/
• Living with Hearing Loss https://www.facebook.com/groups/livingwithhearingloss/
• Hearing Loss Association of America Community https://www.facebook.com/groups/363776767846053/

Instagram Content Creators:

• @acousticneuromama
• @hearingoutloud
• @mama.hu.hears
• @hardtohearit
• @deafjamsami
• @carly_sygrove
• @_an_warriors
• @hardofhearingmama
• @shanb_mamasqd

Podcasts:

• The Happy Hearing Podcast https://www.youtube.com/@urbanhearing/videos
• Hard to Hear It https://www.youtube.com/@hardtohearit
• A Slight Change of Plans https://www.youtube.com/@drmayashankar