single sided deafness
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Celebrating Accessibility: A Magical Evening at the Overture Center
It was my first time attending an event celebrating access and accommodations. I loved trying out all the accessibility options and the warmth and welcome I experienced. Continue reading
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Podcast Episode 11: Earle’s Story
In this episode Earle tells his story of being diagnosed with an acoustic neuroma back in 1977. Earle shares his struggles with facial paralysis, headaches, and hearing loss. However, he truly believes he is a better person because of his diagnosis and shares how it altered his viewpoint as well as inspired new creativity in… Continue reading
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Enhancing Accessibility: The Importance of Microphone Use in Presentations
It’s a pet peeve of mine- not using the microphone provided. I wish we could effect change so that people would always use a microphone when presenting. Continue reading
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Smart Watch for Night Alerts with Hearing Loss
Have you ever slept through a critical alarm? Once I slept through a fire alarm, I realized I needed a better system to keep me safe at night. Continue reading
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Flying with a Sunflower Lanyard
In my recent travels, I had an opportunity to wear a sunflower lanyard to share that I have an invisible disability. I would definitely recommend the sunflower lanyard if your airport participates. Continue reading
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My Hearing Loss Makes Me a Better Conversation Partner
While this may seem counterintuitive, I truly believe I am a better conversation partner since I lost all my hearing in one ear. Continue reading
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Podcast Episode 7: Sean and Chris
In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
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Ear Plugs vs AirPods for Hearing Protection
Hearing protection is incredibly important, and I have found it critical for my hearing loss life to find options that meet my needs. I have used both ear plugs and AirPods Pro 2 for hearing protection, and I wanted to share my likes and dislikes for each system. Continue reading
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Podcast Episode 6: DJ’s Story
In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him… Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
