single sided deaf
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Podcast Episode 7: Sean and Chris
In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
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Please Don’t Correct Me On My Own Experience
Sometimes well meaning people in your life want to contradict how you describe your abilities and struggles. While this is well intentioned, as a communication practice it can be quite harmful. Continue reading
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Skin Care and Bone Anchored Hearing Devices
There are certain skincare measures that are important for the maintenance of an abutment style bone anchored hearing device. The skincare seems to daunt people at times, but I have found it reasonably easy and successful. Continue reading
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Situations that are Challenging for Hearing with Only One Ear
It’s World Hearing Day! I wanted to shine a spotlight on how single sided deafness can be a challenging hearing loss by sharing locations where I struggle with my unilateral hearing. Continue reading
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Adventures in Hearing Loss & Theatre
I’ve had a lifelong love of theatre, but hearing loss has added some complications. After trying many options and some advocacy, I am grateful for the opportunity to enjoy theatre with captions. Continue reading
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My Children are Advocates
I have been surprised and amazed at how my children have become advocates for me and for the hearing loss community. I am so grateful for their support and their efforts to break down hearing loss stigma. Continue reading
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Anticipatory Grief by DJ Hilley
This beautiful article by licensed professional counselor DJ Hilley delves into his struggles and coping mechanisms for handling the anticipatory grief brought to his life by his acoustic neuroma diagnosis and projected hearing loss. Continue reading
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MRIs and Bone Anchored Hearing Devices
There are some extremely important considerations for MRIs when you choose a bone anchored hearing device. There are currently two categories of these devices on the market and they do not interact with MRIs in the same manner. Continue reading
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The Gift of Not Having to Converse
As a working mom, my life is chock full of chatting and talking. I have learned to appreciate those moments where I can bask in a loved one’s presence and skip the talking. Continue reading
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Making My World Quieter Improves My Life
I recently found a small way to quiet my home and it was such a game changer and improvement to my quality of life. This reminded me how important it is to audit the sound in my world to see how I can adjust things to make my life more comfortable and ease communication. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 