hard of hearing
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Hearing Accommodations for a Novel Experience: A Case Study
Asking for accommodations can be overwhelming. Here I break down a recent experience I had attending an event that was completely new to me. The accommodations truly made the event a success for me. Continue reading
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Situations that are Challenging for Hearing with Only One Ear
It’s World Hearing Day! I wanted to shine a spotlight on how single sided deafness can be a challenging hearing loss by sharing locations where I struggle with my unilateral hearing. Continue reading
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My Tag-a-long Hearing Loss Supplies
I like to be ready for whatever comes my way. Here’s a peak into my hearing loss assistance pouch I carry with me. Continue reading
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Adventures in Hearing Loss & Theatre
I’ve had a lifelong love of theatre, but hearing loss has added some complications. After trying many options and some advocacy, I am grateful for the opportunity to enjoy theatre with captions. Continue reading
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How To Put On a Bone Anchored Hearing Device
I have been asked what the process is like for putting on and taking off my bone anchored device. This video demonstrates the simple process. Continue reading
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My Children are Advocates
I have been surprised and amazed at how my children have become advocates for me and for the hearing loss community. I am so grateful for their support and their efforts to break down hearing loss stigma. Continue reading
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Why I Volunteer
I have been thinking about what volunteering brings into my life, and my gratitude for this community. *Spoiler alert* I volunteer for you. Continue reading
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Anticipatory Grief by DJ Hilley
This beautiful article by licensed professional counselor DJ Hilley delves into his struggles and coping mechanisms for handling the anticipatory grief brought to his life by his acoustic neuroma diagnosis and projected hearing loss. Continue reading
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The Challenge of Multitasking
It can be so tempting to multitask, however, doing so many things at once can be draining. Add in hearing loss and balance issues, and the cost to multitask can well outweigh the time savings. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 