podcast
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Podcast Episode 6: DJ’s Story
In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him… Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Podcast Episode 5: Maggie’s Story
Maggie decided on retrosigmoid surgery to treat her acoustic neuroma. Her hearing journey has been unusual, and she has struggled with balance issues as well as vision problems. Nonetheless, she is leading a very active life including canoeing and wood chopping. Continue reading
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Podcast Episode 4: Zoe’s Story
In this episode Zoe shares the story of her diagnosis and why she chose radiation for her treatment. As a musician, Zoe brings some unique perspectives to her experience of hearing loss. Continue reading
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Podcast Episode 2: Ramiz’s Story
Ramiz’s story of his acoustic neuroma diagnosis and treatment is cinema worthy. Regardless, Ramiz overcame all those obstacles to live a full life and can now look back and share the story of those tumultuous times. Continue reading
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Podcast Episode 1: Michelle’s Story
In this episode, Michelle shares her story of her acoustic neuroma diagnosis back in 2012 when she was twenty-seven years old. Michelle had amazing results from her middle fossa surgery, and her story is very inspirational. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 