Support and advocacy for Acoustic Neuroma (Vestibular Schwannoma) and hearing loss (especially single sided deafness)


Podcast Episode 12: Pooja’s Story

In this episode Pooja shares her experience of navigating her acoustic neuroma diagnosis through the NHS in the UK. Pooja had translabyrinthine surgery to treat her 4cm tumor, so she did lose all her hearing in the affected ear. Pooja shares her large and small struggles and how focusing on the small daily wins really helped carry her through the recovery process. She goes into detail on many of the unseen challenges of an acoustic neuroma: fatigue, overstimulation, hearing struggles, and balance challenges. Pooja found that practice and experimentation helped her grow the skills to become comfortable again in difficult environments. She also found community and connecting with others diagnosed with acoustic neuromas made a large positive impact in her life.

#acousticneuroma #vestibularschwannoma #braintumor #acousticneuromawarrior



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About Me

Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.