Support and advocacy for Acoustic Neuroma (Vestibular Schwannoma) and hearing loss (especially single sided deafness)


My Tag-a-long Hearing Loss Supplies

I have long been a believer of the boy scouts’ motto, “Be prepared.” Maybe it’s because I am in a mothering stage of life, but I like to have whatever I may need on hand. Whether it is a snack, tissue, or nail clippers- I always try to carry any supplies I may need in my purse. I honestly don’t know how people who don’t habitually carry bags manage life.

I have a range of hearing loss items that I like to have with me because they are useful in certain situations. Sometimes I chuckle to myself as I get situated at a live performance with my jumble of hearing loss items in my lap. At most performances I like to test out various technologies till I maximize my hearing ability, comfort, and safety. It can take a few minutes to find the right combination of items for a given situation.

I thought I would share a glimpse into my hearing loss pouch that I bring along with me.

  • I always carry ear plugs. If you look closely, you can see that I keep a couple styles in my pouch. Since I only need one plug (deaf left ear), I typically have one loop ear plug with a mute in it and one without so I can test the two different options to find the right degree of noise reduction for each situation.
  • I bring my AirPods Pro 2 with me. I will use the hearing aid feature in situations with a lot of background noise, such as a meal at a noisy restaurant. I also use them for some loud performances as they are rated for hearing protection. I find in some situations like live music the AirPods make the sound level safe and comfortable as well as pleasantly crisp.
  • I bring a remote microphone with me. I love to have this for situations like attending yoga class. I find it much easier to hear the instructor over the music when the sound is sent directly to my device. The white remote microphone, the EduMic, allows me to use a hearing loop system so that a venue’s sound system sends the sound directly to my device. The EduMic can also be plugged into some sound systems, which I why I have the cord. My black remote mic, the ConnectClip, allows me to stream my phone to my device. Both can be clipped to collars or worn with the black lanyard.
  • I carry a hard of hearing button. I use this for situations where I want to notify people I may miss things, such as attending a convention.
  • I have a card for my bone anchored hearing device that has MRI and security information on it. I have never needed it for airport security but I do need it every time I get an MRI.
  • I always carry spare batteries for my bone anchored hearing device. My battery typically lasts 10-14 days depending how much I am streaming. It seems like batteries always choose the least inconvenient moment to die, so it is worth having batteries along.
  • I keep my sunflower lanyard in my pouch also. The sunflower lanyard is a visible symbol that I have an invisible disability and may need accommodation. This is recognized by specific businesses. Within the US this is primarily useful for flying. In other countries a variety of businesses utilize the sunflower system including other modes of transportation and shops.
  • Not pictured, but I also frequently bring along a battery pack to charge my cell phone on the go if I am expecting to need to use assistance programs like live transcribe, software that provides captioning as people speak.
  • Lastly, I want to give a shout out for the amazing pouch. I got it from DEAFintely Wonderful on Etsy. I don’t think of my hearing assistance items as junk, but I do sometimes feel amused by the sheer amount I lug around. The pouch just really felt exactly perfect for organizing my items, sentiment included.



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About Me

Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.