Support and advocacy for Acoustic Neuroma (Vestibular Schwannoma) and hearing loss (especially single sided deafness)


Hearing Accommodations Not As Promised

A couple of months ago, I decided I wanted to take my husband to a performance of Clue at a local theater. I wasn’t sure if it would be the type of show where hearing would be a challenge, such as a musical. I decided to do some due diligence to look into accessibility options.

The theater showing Clue (Fox Cities PAC) sometimes uses GalaPro app for captioning and also offers open captioning for specific perfomances. When I looked into options for Clue, the accessibility website informed me that there would be no GalaPro option for Clue, but the matinee would have open captioning.

I wanted to make sure I could enjoy the performance, so I decided to attend the matinee. I had not utilized open captioning at this theatre before, and I did not know where the caption bar would be located. The accessibility website said to call to purchase seats to view captioning, so that is what I did. When I called, they only offered me seats in one area, the orchestra. Now, I typically do not want to pay the high prices of an orchestra seat, but I wanted captions, so I decided I would spring for it. They assured me multiple times that the seats were very good. I felt frustrated, though, that I had to pay a higher price for accessibility.

When I arrived to see the show and walked to my seats, I was dismayed to realize the seats they gave me were absolutely horrible for using the captions. While the seats were close to both the stage and the caption bar, the seats were so close that I had to turn my head left to see the stage and right to see the caption bar. There was no way I could read the captions at the same time as watching the show. That literally defeats the entire purpose of captioning.

I went to the ticket office and asked them if they could move me to a different seat where I could actually use the captions. They said that they could not, but informed me that I could use the GalaPro app on my phone for captioning (despite all their marketing claiming otherwise). So I quickly got the app loaded.

Meanwhile, I also attempted to hook into the theatre’s hearing loop so the sound would be sent directly to my hearing aid. The hearing loop did not work at all. Though I am inclined to think if it had worked, I would have ended up turning it off as the show had many loud sound effects like thunder that would have overwhelmed my hearing aid.

After this frustrating experience, I decided to reach out to the theatre describing my experience. I really didn’t want the next person with hearing loss to have such a horrible experience at the theatre. I was very impressed when the Director of Productions and the House Manager called me within a day to make sure they understood the accessibility issues and correct them for the future. After our extended conversation, I am very hopeful that next time will be a better experience.

I did really like the GalaPro App captioning experience where I could read the captions on my phone. I think I am likely to do that in the future if possible so I can purchase tickets anywhere and guarantee I can see the captions. This theater places the caption bar house right. I am deaf in my left ear, so I typically like to sit on the left side so my hearing ear will have the best chance of catching the sound.

It was definitely super frustrating that I did all my research and still had to fight to have the assistance I needed to enjoy the show. But I was reminded by my experience how incredibly important it is that we speak up and let people know where situations are inaccessible in order to benefit the entire hearing loss community. Here’s hoping the next experience is a better one!



2 responses to “Hearing Accommodations Not As Promised”

  1. Julia Metternich Olson Avatar
    Julia Metternich Olson

    Hi Emily, Thank you for your advocacy efforts! If we don’t speak up about our needs for hearing assistive technology, no one else is going to do it for us. The PAC in the Fox Cities, from the time it was in the planning stages, has made every effort to be accessible to us. We are so fortunate for that. Having an HLAA Chapter in Appleton during those years gave us the power to advocate successfully…and the planners listened! Every now and then there has been a glitch in the system. Unfortunately, the CLUE performance was one of them. I know you know we had a group of HLAA members at that same performance who let them know about the problems. A special unexpected bonus of that day was connecting with you. Thanks to HLAA and to your blog sharing your national HLAA convention experience, I was able to subscribe to your blog and go back to read about the PAC experience. HLAA Fox Valley Chapter has members from all over the central and eastern part of the state. I hope you might find some of our activities of interest. Now and then we schedule a theater night at the Fox Cities PAC. By purchasing group tickets, we’re able to get a discount along with good seats. Our chapter’s newsletter provides monthly information on events and program topics. I encourage you to subscribe to it so you can keep up with what we are doing. HLAA has been a godsend to many of us over the 40 years Fox Valley Chapter has been in existence. I think you may have already subscribed via your communications with our members who were at the national HLAA convention in Phoenix. If not, let us know your address/e-mail address so we can add you to the list. Enjoy what remains of the summer! Julie Olson, HLAA Fox Valley Chapter Newsletter Editor. hlaafoxvalley@gmail.com

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    1. Julia, thank you so much for your thoughts. I have connected to HLAA Fox Valley via Michelle, she has been an amazing resource/ mentor. I am actually grateful that the Clue experience happened so that I had the opportunity to connect. I would love to attend sometime, my busy schedule is the challenge for sure! I have been enjoying the newsletter. I look forward to future opportunities to connect 🙂

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About Me

Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.