acoustic neuroma
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Informed Decisions, Better Outcomes: ANAwareness Week and World Vestibular Schwannoma Day
The Acoustic Neuroma Association is doing all sorts of great presentations and webinars this week to celebrate World Vestibular Schwannoma Day. I love this year’s theme: informed decisions, better outcomes. In my experience supporting others with Acoustic Neuromas, as well as my own journey, I have really seen the benefit of informed decisions. Continue reading
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Book Recommendations for Acoustic Neuroma Warriors
I do so love a good book. I am going to share a compiled list of book recommendations. The ones I have read, touched me deeply and helped me on my journey. Continue reading
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The Dreaded Question: How Are You Doing?
While I really appreciate my close friends and family checking in with me, I often feel exhausted by the small talk conversation of “How are you doing?” It seems odd to me that usually the only socially acceptable answer is “fine.” Why do we bother to ask the question at all if the only answer… Continue reading
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Listening to What Your Body is Telling You
I have a tendency to be a little too stiff upper lip, and push through things. But my body has been forcibly teaching me how important it is not to ignore or pass over vital information that is being conveyed. Continue reading
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Go Gray for May and May is Better Hearing Month
May is for brain tumor awareness and better hearing. As both of these apply to my specific situation, I am very amused that these two campaigns happen to be the same month. #GrayMay #BetterHearing #BetterHearingMonth #HLAA Continue reading
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My Phone is an Accessibility Device
I use my phone to help with my hearing loss in a variety of ways, but in some situations I feel like I get judged for being a rude young person for utilizing my assistance technology. I’d love to see cultural stigma against phones change, so I can feel comfortable using my phone for accessibility… Continue reading
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Got water? Dehydration and Heat Sensitivity with Acoustic Neuroma Diagnosis
I have struggled with dehydration and heat sensitivity for a long time, never suspecting it may be related to my Acoustic Neuroma diagnosis. You can imagine my shock when I discovered that many people diagnosed with Acoustic Neuromas experience issues with overheating and dehydration. Continue reading
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Choosing Your Doctor for Acoustic Neuroma Treatment
While doctors are wonderful resources and extremely knowledgeable, you may not get connected to the perfect doctor for your diagnosis on the first try. It is super important to do your due diligence to choose the correct physician to treat you. It is not a situation where you want to go with good enough- it… Continue reading
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Your Relationship with Your Body
There are many cultural pressures that can make body image and our relationship with our body challenging. Add in a health crisis, and it gets a lot more complicated and difficult. Continue reading
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The Struggle of the Recovery Plateau
When I get to a certain point in recovery where I am doing significantly better but am not all the way done healing, I often experience a feeling of recovery plateau. I know I am improving somewhat, but the gains feel really small and incremental day to day. This is the point in recovery I… Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 