brain
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New Treatment Clinical Trial for Acoustic Neuromas
There is currently a clinical trial for a new treatment for vestubular schwannoma brain tumors. This treatment utilizes gene therapy. They are researching if it improves hearing and/or shrinks tumors. Continue reading
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Parenting and Brain Surgery Recovery
While multitasking brain surgery recovery and parenting is no small feat, it is possible. I found I benefited from my child’s presence and she also learned positive life lessons from my experience. Continue reading
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Isn’t a Brain Tumor an Emergency?
Finding out you have a brain tumor is a surreal experience. Oftentimes, when you are diagnosed with an acoustic neuroma, you have never even heard of it. It can be hard to know how dire the situation is. Continue reading
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How to Support Someone with a Brain Tumor
When someone you love receives an acoustic neuroma diagnosis, it can be hard to know how to help. As someone who has had an acoustic neuroma and has been a caregiver, here is my advice on how to best show support. Continue reading
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It’s Good to Learn to Laugh at Yourself
I don’t know about you, but I have had some epic fails since I started on my Acoustic Neuroma journey. I have found a sense of humor to be invaluable. Remembering to not take myself so seriously really helps me accept who I am. I will share some of my favorite ridiculous moments. Continue reading
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NK’s Story of Gamma Knife Radiation
This is NK’s story of their gamma knife radiation experience. After 2 brain surgeries, NK underwent gamma knife radiation to arrest tumor growth. Continue reading
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Brain Surgery and Fat Grafts
It seems weird that a brain surgery would necessitate an abdominal incision, but that is often the case. Fat grafts are commonly used in Acoustic Neuroma surgeries and often under explained. Continue reading
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Informed Decisions, Better Outcomes: ANAwareness Week and World Vestibular Schwannoma Day
The Acoustic Neuroma Association is doing all sorts of great presentations and webinars this week to celebrate World Vestibular Schwannoma Day. I love this year’s theme: informed decisions, better outcomes. In my experience supporting others with Acoustic Neuromas, as well as my own journey, I have really seen the benefit of informed decisions. Continue reading
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Book Recommendations for Acoustic Neuroma Warriors
I do so love a good book. I am going to share a compiled list of book recommendations. The ones I have read, touched me deeply and helped me on my journey. Continue reading
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Listening to What Your Body is Telling You
I have a tendency to be a little too stiff upper lip, and push through things. But my body has been forcibly teaching me how important it is not to ignore or pass over vital information that is being conveyed. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 