Support and advocacy for Acoustic Neuroma (Vestibular Schwannoma) and hearing loss (especially single sided deafness)


An Extrovert with Hearing Loss

I grew up amidst my family’s business. It was the sort of childhood where I got to meet new people all the time, and I learned top-notch social skills from a very young age. As a very extroverted child, I thrived in this people heavy environment. Constant new friends and opportunities to meet new people felt like paradise.

As I aged, I continued to be a people person. I remember feeling very mixed about having my own dorm room in college when I worked as a resident advisor. It was nice to have the space, but at times, it could get lonely for me. I was very aware that interactions with people recharged me and were a necessity for my well-being.

At age 27, I lost all my hearing in my left ear because of an acoustic neuroma brain tumor and the surgery to remove the tumor. In the space of a few months, I went from normal hearing to life with a significant hearing loss. Going down to only one functional ear changed a lot of social interactions for me. Because I don’t have two working ears to pick out the sound I am focusing on, hearing in situations with background noise became extremely draining. I have to focus hard to hear and still often miss things that are said in loud environments. The sound tends to blur into a cacophony.

Extroversion is typically described as when you recharge by spending time with people. Social interactions energize you. Once I lost hearing in one ear, suddenly, social interactions were very draining instead of recharging. I struggled with this sudden change and figuring out how to get the connection with people that I craved but not exhaust myself with listening fatigue.

At first, I worried I would have to substantially alter my life or sacrifice previous loves. But upon reflection and time spent trying things, I realized that my preference had never been for parties or very loud scenes. I have always enjoyed spending time with close friends more than a large group. I have learned that focusing on one on one time or small groups is much more rewarding than participating in a larger group, so that is where I focus my time and energy.

It took some time and experimentation for me to figure out situations and places that worked for me. This restaurant has much better acoustics, so I tend to meet my friends there. That event is really tiring, and the fun I would get won’t outweigh the fatigue. Strategy and planning have helped me get to a place where I have a decent idea if something would be enjoyable or exhausting (or maybe both, but the joy is enough to be worth the tiredness). I have also become much better about opting out of things I never enjoyed. I focus on budgeting my listening energy for when I get the best returns.

I also have spent time teaching my friends what I need to be successful in a social setting. These days they are wonderful about checking in with me before picking a place to get together. They absolutely let me pick my seat first. They practice good conversation hygiene (facing me, not covering their mouths, etc.) and are patient with me when I ask for them to repeat themselves. I have learned that it is easier to hear people I already know, as I am familiar with their voice and cadence and have a better ability to guess their conversation topics. I also have become a better self advocate, feeling more comfortable reminding friends what I need if they accidentally forget. As people have had one way of communicating for a very long time, it can be hard to change. In the same way I need grace from them for what I don’t hear, I need to give grace to my friends when they forget to use best practices for communicating.

After almost ten years of living with hearing loss, I am not really sure if I would label myself as an extrovert anymore. As people really are a spectrum, maybe these days I am more an ambivert (in the middle of extrovert and introvert). I still relish my people time and my connections, but I do need listening breaks frequently. I am definitely a people person, but I also adore the quiet moments that are much too infrequent in motherhood. I have come to a place where I am very comfortable with my social sphere and interactions. I make my social time count, focusing on quality over quantity. And I plan on the hearing fatigue that comes with socializing.



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About Me

Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.