acoustic neuroma
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Isn’t a Brain Tumor an Emergency?
Finding out you have a brain tumor is a surreal experience. Oftentimes, when you are diagnosed with an acoustic neuroma, you have never even heard of it. It can be hard to know how dire the situation is. Continue reading
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10 Years After Brain Surgery
This week, I am celebrating the 10th anniversary of my brain surgery. This milestone has made me reflective on what the last ten years have been like and how much life I have lived post brain tumor. Continue reading
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Eye Problems After Acoustic Neuroma Surgery
Eye problems after surgery can be an unfortunate surprise. Eye care is critical and time sensitive, so catching these concerns early and following up with medical professionals is important. Continue reading
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Hear Me Out Podcast: How My Acoustic Neuroma Diagnosis Led to Advocacy
I was honored to be on the Hear Me Out Podcast. I had a wonderful time chatting with @hardtohearit about working with hearing loss, single sided deaf hacks, advocacy, and the importance of community. Continue reading
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Jaw Problems with Acoustic Neuroma
I don’t often see doctors or reference materials describing links between jaw issues and acoustic neuromas, yet I have heard many people share these concerns. I did some research on the topic, and this is what I found. Continue reading
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How to Support Someone with a Brain Tumor
When someone you love receives an acoustic neuroma diagnosis, it can be hard to know how to help. As someone who has had an acoustic neuroma and has been a caregiver, here is my advice on how to best show support. Continue reading
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Living vs. Surviving
I leaned into survival mode to help carry me through my initial brain tumor diagnosis and treatment. When I was into recovery and it was time to start actually living life again and not just survive, I was surprised by how big the transition was. Continue reading
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An Extrovert with Hearing Loss
As a child, I was a huge extrovert. Losing my all my hearing in one ear at age 27 fundamentally changed my interactions with people, especially in places with background noise. Continue reading
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Making Hidden Disabilities Visible- Sunflower Lanyard
The sunflower lanyard is an opportunity for people with hidden disabilities or conditions to make their need for possible accommodations visible. It lets folks know you may need time, space, assistance, etc., in order to participate. It’s an exciting solution to the fatigue of self disclosure. Continue reading
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It’s Good to Learn to Laugh at Yourself
I don’t know about you, but I have had some epic fails since I started on my Acoustic Neuroma journey. I have found a sense of humor to be invaluable. Remembering to not take myself so seriously really helps me accept who I am. I will share some of my favorite ridiculous moments. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 