acoustic neuroma
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AirPods as Hearing Aids for Single Sided Deafness
The Airpods Pro 2 hearing aid functionality is the best non-prescription solution I have found for background noise. The hearing aid functionality does not have sound rerouting functionality. It does not pick up sound on the deaf side and send it to the hearing side. The hearing aid functionality does include useful hearing protection. Continue reading
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Life with Pain
I have really found that my relationship to pain is that pain diminishes me. It takes a large chunk out of my capacity to do life. Pain eats up my energy. It slows me and dims my internal light. Continue reading
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Invisible Disability
It’s invisible disability week. I have often felt that the fact that my disabilities are invisible is a double-edged sword. On the one hand, I have the choice to disclose. On the other hand, people literally never assume I have a disability. Continue reading
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Brain Surgery and Hair
There are a ton of challenges after brain surgery, and worrying your appearance isn’t “you” just makes everything harder. So let’s talk about brain surgery and hair. Continue reading
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Living in the Dichotomy of Doing Well but Also Things are Hard
I have frequently had the disconnect of doing well but also being in a really difficult place, all at the same time. It was very surreal to find out I had a brain tumor when I felt fine and the only symptom I was really experiencing was hearing loss. Continue reading
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Scanxiety
It is totally normal to feel heightened anxiety around a scan. Everyone worries a scan may mean getting bad news. I have a tool belt for getting through scan anxiety. I’d love to hear how you navigate that stress. Continue reading
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Getting Through the Hard Days
These are some of my favorite coping mechanisms to power through the challenging days. What are some tools you have found to help you manage tough moments? Continue reading
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Brain Surgery and Fat Grafts
It seems weird that a brain surgery would necessitate an abdominal incision, but that is often the case. Fat grafts are commonly used in Acoustic Neuroma surgeries and often under explained. Continue reading
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Acoustic Neuroma and Driving
Do you struggle with driving? Many people report that they find driving more fatiguing after an AN diagnosis. Some folks find turning their head quickly to be disorienting. At times, the auditory stimulation from driving is overwhelming. Continue reading
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Disability Pride Month- Feelings About Labeling
I choose to call myself a person with a disability. To me, admitting I have a disability doesn’t make me less. In some ways, it feels somewhat freeing. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 