single sided deaf
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I am Done Waiting for Life to Get Better
Everyone seems to be currently reviewing their previous year and setting goals for the new year. One lesson I learned in 2024 is that I am no longer wasting my time waiting for life to get better. Continue reading
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My Review of Oticon Ponto 5 Superpower
I recently received a new Ponto 5 Superpower bone anchored hearing aid. I love it. There are several improvements over my old Ponto. I have found a few surprises in the upgrade as well. Continue reading
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The Upgrade Process for My Bone Anchored Hearing Aid
There are so many barriers to the hearing aid upgrade process: information, cost, appointment availability, and insurance red tape (to name a few). Despite researching, I encountered some surprises while upgrading my device. But I am so glad I did get a new aid. Continue reading
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Feeling Unsafe with Hearing Loss
Losing your hearing can often come with a loss of feeling safe. I have sacrificed many hours of sleep to the anxious thoughts of not hearing something vital. Hearing loss definitely comes both with safety risks as well as anxious thoughts about safety. Continue reading
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Shopping with Children When You have Hearing Loss
I typically find shopping quite fatiguing, but with children along, it takes on another level of exhaustion. Between trying to hear what the child is saying and being swamped by all the auditory stimulation of the shopping venue, I can feel hugely hearing fatigued after just one stop with kids along. Continue reading
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AirPods as Hearing Aids for Single Sided Deafness
The Airpods Pro 2 hearing aid functionality is the best non-prescription solution I have found for background noise. The hearing aid functionality does not have sound rerouting functionality. It does not pick up sound on the deaf side and send it to the hearing side. The hearing aid functionality does include useful hearing protection. Continue reading
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Sounds I Love and Hate
Between the complexities introduced by my bone anchored hearing aid as well as having only one functional ear, I have found many noises I like and dislike. What are some of your most and least favorite sounds? Continue reading
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Invisible Disability
It’s invisible disability week. I have often felt that the fact that my disabilities are invisible is a double-edged sword. On the one hand, I have the choice to disclose. On the other hand, people literally never assume I have a disability. Continue reading
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Bone Anchored Hearing Aid- My Stats
My recent audiology appointment really demonstrated the huge amount of assistance the baha gives me. I have always said it is not like having 2 working ears, but it is a lot better than one. By the numbers, it is a solid ear and a half. Continue reading
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I Can’t Hear When I am Tired
Because tuning things out is a necessary survival skill to not get completely overwhelmed by auditory stimulation, it seems that after a certain level of tiredness, my brain just checks out on its own without consulting me. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 