acoustic neuroma
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Tinnitus Stories
I love to share stories on this blog, and I don’t have a lot of in-depth experience with tinnitus, so I asked others who struggle with tinnitus to share their stories. Four different wonderful souls got in touch regarding their tinnitus experience. Continue reading
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Please Don’t Do This When Speaking to Someone with Hearing Loss
If you have never experienced hearing loss, it can be hard to know how to communicate successfully with someone who is hard of hearing. Here is a list of communication faux pas to avoid when talking to someone with hearing loss. Continue reading
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NK’s Radiation Research Experience
This is NK’s story of researching their options for radiation for an acoustic neuroma brain tumor. NK shares their tips and tools, as well as specific information that is useful in the decision making process. Continue reading
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NK’s Story of Gamma Knife Radiation
This is NK’s story of their gamma knife radiation experience. After 2 brain surgeries, NK underwent gamma knife radiation to arrest tumor growth. Continue reading
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I am Done Waiting for Life to Get Better
Everyone seems to be currently reviewing their previous year and setting goals for the new year. One lesson I learned in 2024 is that I am no longer wasting my time waiting for life to get better. Continue reading
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The Upgrade Process for My Bone Anchored Hearing Aid
There are so many barriers to the hearing aid upgrade process: information, cost, appointment availability, and insurance red tape (to name a few). Despite researching, I encountered some surprises while upgrading my device. But I am so glad I did get a new aid. Continue reading
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Back to Work After Brain Surgery
It’s hard to know what the transition back to work after brain surgery will look like. I had a unique situation for my work, and I found some accommodations that helped me in my work life. Continue reading
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My Acoustic Neuroma Balance Journey
Balance can be one of the most difficult struggles when you have an Acoustic Neuroma diagnosis. From clumsy teen to wobbly post surgery patient to aerial yoga enthusiast, this is my balance story. Continue reading
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Shopping with Children When You have Hearing Loss
I typically find shopping quite fatiguing, but with children along, it takes on another level of exhaustion. Between trying to hear what the child is saying and being swamped by all the auditory stimulation of the shopping venue, I can feel hugely hearing fatigued after just one stop with kids along. Continue reading
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Alcohol After Brain Surgery
The experience of imbibing alcohol after brain surgery can be different or very similar to life before the surgery. While many people can easily enjoy alcohol, others struggle with headaches, tinnitus, and dehydration. How does alcohol feel in your life? Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 