acoustic neuroma
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My Acoustic Neuroma Balance Journey
Balance can be one of the most difficult struggles when you have an Acoustic Neuroma diagnosis. From clumsy teen to wobbly post surgery patient to aerial yoga enthusiast, this is my balance story. Continue reading
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Shopping with Children When You have Hearing Loss
I typically find shopping quite fatiguing, but with children along, it takes on another level of exhaustion. Between trying to hear what the child is saying and being swamped by all the auditory stimulation of the shopping venue, I can feel hugely hearing fatigued after just one stop with kids along. Continue reading
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Alcohol After Brain Surgery
The experience of imbibing alcohol after brain surgery can be different or very similar to life before the surgery. While many people can easily enjoy alcohol, others struggle with headaches, tinnitus, and dehydration. How does alcohol feel in your life? Continue reading
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AirPods as Hearing Aids for Single Sided Deafness
The Airpods Pro 2 hearing aid functionality is the best non-prescription solution I have found for background noise. The hearing aid functionality does not have sound rerouting functionality. It does not pick up sound on the deaf side and send it to the hearing side. The hearing aid functionality does include useful hearing protection. Continue reading
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Life with Pain
I have really found that my relationship to pain is that pain diminishes me. It takes a large chunk out of my capacity to do life. Pain eats up my energy. It slows me and dims my internal light. Continue reading
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Invisible Disability
It’s invisible disability week. I have often felt that the fact that my disabilities are invisible is a double-edged sword. On the one hand, I have the choice to disclose. On the other hand, people literally never assume I have a disability. Continue reading
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Brain Surgery and Hair
There are a ton of challenges after brain surgery, and worrying your appearance isn’t “you” just makes everything harder. So let’s talk about brain surgery and hair. Continue reading
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Living in the Dichotomy of Doing Well but Also Things are Hard
I have frequently had the disconnect of doing well but also being in a really difficult place, all at the same time. It was very surreal to find out I had a brain tumor when I felt fine and the only symptom I was really experiencing was hearing loss. Continue reading
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Scanxiety
It is totally normal to feel heightened anxiety around a scan. Everyone worries a scan may mean getting bad news. I have a tool belt for getting through scan anxiety. I’d love to hear how you navigate that stress. Continue reading
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Single Sided Deafness and Sound Sensitivity
I think people automatically assume that you want volume up when you have hearing loss. Loud sounds often hurt me, now that I am single sided deaf. Do you feel more sensitive to sound? Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 