brain-tumor
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You Didn’t Hear That Either? *Phew*
I wrestle with feelings of failure when I don’t hear something. Realizing that other people (even those with regular hearing) also struggle to hear everything has been very empowering. Continue reading
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Jaw Problems with Acoustic Neuroma
I don’t often see doctors or reference materials describing links between jaw issues and acoustic neuromas, yet I have heard many people share these concerns. I did some research on the topic, and this is what I found. Continue reading
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How to Support Someone with a Brain Tumor
When someone you love receives an acoustic neuroma diagnosis, it can be hard to know how to help. As someone who has had an acoustic neuroma and has been a caregiver, here is my advice on how to best show support. Continue reading
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Why Did I Choose to Get a Bone Anchored Hearing Aid?
People often wonder why I picked a bone anchored hearing aid to help with my hearing loss. Choosing a hearing device is very personal, but here is a look at the factors that impacted my decision. Continue reading
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Living vs. Surviving
I leaned into survival mode to help carry me through my initial brain tumor diagnosis and treatment. When I was into recovery and it was time to start actually living life again and not just survive, I was surprised by how big the transition was. Continue reading
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An Extrovert with Hearing Loss
As a child, I was a huge extrovert. Losing my all my hearing in one ear at age 27 fundamentally changed my interactions with people, especially in places with background noise. Continue reading
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Making Hidden Disabilities Visible- Sunflower Lanyard
The sunflower lanyard is an opportunity for people with hidden disabilities or conditions to make their need for possible accommodations visible. It lets folks know you may need time, space, assistance, etc., in order to participate. It’s an exciting solution to the fatigue of self disclosure. Continue reading
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Too Young for Health Problems
I have frequently struggled with being misunderstood as a young person with health issues. It can be really challenging to be met with disbelief when you are in the midst of a health crisis. Have you had this experience, too? Continue reading
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Tinnitus Stories
I love to share stories on this blog, and I don’t have a lot of in-depth experience with tinnitus, so I asked others who struggle with tinnitus to share their stories. Four different wonderful souls got in touch regarding their tinnitus experience. Continue reading
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NK’s Radiation Research Experience
This is NK’s story of researching their options for radiation for an acoustic neuroma brain tumor. NK shares their tips and tools, as well as specific information that is useful in the decision making process. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 