acoustic neuroma
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Why I Volunteer
I have been thinking about what volunteering brings into my life, and my gratitude for this community. *Spoiler alert* I volunteer for you. Continue reading
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Podcast Episode 2: Ramiz’s Story
Ramiz’s story of his acoustic neuroma diagnosis and treatment is cinema worthy. Regardless, Ramiz overcame all those obstacles to live a full life and can now look back and share the story of those tumultuous times. Continue reading
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Vestibular Rehabilitation
I honestly cannot say enough good things about vestibular rehabilitation. It literally changed my life. 10/10 would recommend to a friend. Continue reading
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Anticipatory Grief by DJ Hilley
This beautiful article by licensed professional counselor DJ Hilley delves into his struggles and coping mechanisms for handling the anticipatory grief brought to his life by his acoustic neuroma diagnosis and projected hearing loss. Continue reading
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Podcast Episode 1: Michelle’s Story
In this episode, Michelle shares her story of her acoustic neuroma diagnosis back in 2012 when she was twenty-seven years old. Michelle had amazing results from her middle fossa surgery, and her story is very inspirational. Continue reading
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Nikita’s Story: Living With an Acoustic Neuroma
This is Nikita’s story of life with an acoustic neuroma. One day, the sound changed and that set off a series of huge alterations in her life. Continue reading
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The Challenge of Multitasking
It can be so tempting to multitask, however, doing so many things at once can be draining. Add in hearing loss and balance issues, and the cost to multitask can well outweigh the time savings. Continue reading
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Self Advocacy is Exhausting
Self advocacy can be grueling but its importance cannot be overstated. I hope this encourages you to keep on putting in the hard work to be your own advocate. Continue reading
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MRIs and Bone Anchored Hearing Devices
There are some extremely important considerations for MRIs when you choose a bone anchored hearing device. There are currently two categories of these devices on the market and they do not interact with MRIs in the same manner. Continue reading
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New Treatment Clinical Trial for Acoustic Neuromas
There is currently a clinical trial for a new treatment for vestubular schwannoma brain tumors. This treatment utilizes gene therapy. They are researching if it improves hearing and/or shrinks tumors. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 