acoustic neuroma
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Self Advocacy is Exhausting

Self advocacy can be grueling but its importance cannot be overstated. I hope this encourages you to keep on putting in the hard work to be your own advocate. Continue reading
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MRIs and Bone Anchored Hearing Devices

There are some extremely important considerations for MRIs when you choose a bone anchored hearing device. There are currently two categories of these devices on the market and they do not interact with MRIs in the same manner. Continue reading
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New Treatment Clinical Trial for Acoustic Neuromas

There is currently a clinical trial for a new treatment for vestubular schwannoma brain tumors. This treatment utilizes gene therapy. They are researching if it improves hearing and/or shrinks tumors. Continue reading
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Ponto Bone Anchored Hearing Device Testimonial

This video explains what I love about my Ponto bone anchored hearing device, and why I chose this hearing device. Continue reading
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Parenting and Brain Surgery Recovery

While multitasking brain surgery recovery and parenting is no small feat, it is possible. I found I benefited from my child’s presence and she also learned positive life lessons from my experience. Continue reading
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Bicycling with One Deaf Ear and One Balance Nerve

Bicycling is one of my great loves. I worried an acoustic neuroma diagnosis would take biking away from me. With some modifications and the right tools, I have been able to continue pursuing my joyful bike rides. Continue reading
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Living in Uncertainty

Throughout my brain tumor journey, I have struggled with uncertainty. As much as I would like guarantees, they just don’t exist. My mindset to handle uncertainty has changed, as I have realized my thoughts are what I can control. Continue reading
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Does an Increase in Symptoms Mean Tumor Growth?

A sudden spike in symptoms can be terrifying. Your mind can immediately go to worst-case scenarios. However, an increase in symptoms does not necessarily equate to tumor growth. Continue reading
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There is no Virtue in Taking the Harder Path

I think we are often fed the line that it is better to handle challenges solo than to accept help. This mentality can keep us from accessing resources and help that can ease our way. My accommodations only diminish my strain, not my abilities. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.

