acoustic neuroma
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Bicycling with One Deaf Ear and One Balance Nerve
Bicycling is one of my great loves. I worried an acoustic neuroma diagnosis would take biking away from me. With some modifications and the right tools, I have been able to continue pursuing my joyful bike rides. Continue reading
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Living in Uncertainty
Throughout my brain tumor journey, I have struggled with uncertainty. As much as I would like guarantees, they just don’t exist. My mindset to handle uncertainty has changed, as I have realized my thoughts are what I can control. Continue reading
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Does an Increase in Symptoms Mean Tumor Growth?
A sudden spike in symptoms can be terrifying. Your mind can immediately go to worst-case scenarios. However, an increase in symptoms does not necessarily equate to tumor growth. Continue reading
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There is no Virtue in Taking the Harder Path
I think we are often fed the line that it is better to handle challenges solo than to accept help. This mentality can keep us from accessing resources and help that can ease our way. My accommodations only diminish my strain, not my abilities. Continue reading
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Isn’t a Brain Tumor an Emergency?
Finding out you have a brain tumor is a surreal experience. Oftentimes, when you are diagnosed with an acoustic neuroma, you have never even heard of it. It can be hard to know how dire the situation is. Continue reading
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10 Years After Brain Surgery
This week, I am celebrating the 10th anniversary of my brain surgery. This milestone has made me reflective on what the last ten years have been like and how much life I have lived post brain tumor. Continue reading
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Eye Problems After Acoustic Neuroma Surgery
Eye problems after surgery can be an unfortunate surprise. Eye care is critical and time sensitive, so catching these concerns early and following up with medical professionals is important. Continue reading
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Hear Me Out Podcast: How My Acoustic Neuroma Diagnosis Led to Advocacy
I was honored to be on the Hear Me Out Podcast. I had a wonderful time chatting with @hardtohearit about working with hearing loss, single sided deaf hacks, advocacy, and the importance of community. Continue reading
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Jaw Problems with Acoustic Neuroma
I don’t often see doctors or reference materials describing links between jaw issues and acoustic neuromas, yet I have heard many people share these concerns. I did some research on the topic, and this is what I found. Continue reading
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How to Support Someone with a Brain Tumor
When someone you love receives an acoustic neuroma diagnosis, it can be hard to know how to help. As someone who has had an acoustic neuroma and has been a caregiver, here is my advice on how to best show support. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 