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Living in Uncertainty
Throughout my brain tumor journey, I have struggled with uncertainty. As much as I would like guarantees, they just don’t exist. My mindset to handle uncertainty has changed, as I have realized my thoughts are what I can control. Continue reading
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Captioning Live Theatre
Live theatre can be challenging with hearing loss, especially with the addition of music in a musical performance. Captions make musicals accessible for many with hearing loss, and I was so excited to play a role in helping the Overture Center test their captions at the show Wicked. Continue reading
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Dry Your Hearing Aids
My audiologist told me the best thing I could do for my hearing aid was to dry it every night. Removing moisture from your devices is so important. However, shopping for a hearing aid dryer can be overwhelming. Continue reading
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Does an Increase in Symptoms Mean Tumor Growth?
A sudden spike in symptoms can be terrifying. Your mind can immediately go to worst-case scenarios. However, an increase in symptoms does not necessarily equate to tumor growth. Continue reading
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There is no Virtue in Taking the Harder Path
I think we are often fed the line that it is better to handle challenges solo than to accept help. This mentality can keep us from accessing resources and help that can ease our way. My accommodations only diminish my strain, not my abilities. Continue reading
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Hearing Loss at The Movies- The Challenge of Dysfunctional Captioning Devices
I love going to the movies, and I am so grateful for the option to have captions to make sure that I don’t miss out. I recently had a negative experience with a captioning device at the movie theater, which was unusual for me. Continue reading
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Hearing Loss Association of America Convention: like Summer Camp for Adults
It may sound silly, but for me, a hearing loss convention contains the excitement and growth comparable to that of a summer camp. I am so grateful for the opportunity to participate in such a spectacular event. Continue reading
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Hearing Loss Stigma
Hearing loss stigma has impacted my life and the lives of many in my community. I felt very validated to have hearing loss stigma chosen for the research symposium at the national HLAA convention. What role has stigma played in your life? Continue reading
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The Importance of Community
I recently enjoyed the most amazing weekend connecting with other bone anchored hearing device users. I have learned that networking with other people who have hearing loss brings immense joy to my life. Continue reading
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Does Single Sided Deafness Need Treatment?
Friends, relatives, and even some doctors will say that hearing loss in one ear isn’t a big deal, and you don’t need treatment. For some people, that may be true. But many people with single sided hearing loss benefit from hearing assistance devices. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
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The "Lucky" Brain Tumor 