-
Living vs. Surviving
I leaned into survival mode to help carry me through my initial brain tumor diagnosis and treatment. When I was into recovery and it was time to start actually living life again and not just survive, I was surprised by how big the transition was. Continue reading
-
An Extrovert with Hearing Loss
As a child, I was a huge extrovert. Losing my all my hearing in one ear at age 27 fundamentally changed my interactions with people, especially in places with background noise. Continue reading
-
Making Hidden Disabilities Visible- Sunflower Lanyard
The sunflower lanyard is an opportunity for people with hidden disabilities or conditions to make their need for possible accommodations visible. It lets folks know you may need time, space, assistance, etc., in order to participate. It’s an exciting solution to the fatigue of self disclosure. Continue reading
-
It’s Good to Learn to Laugh at Yourself
I don’t know about you, but I have had some epic fails since I started on my Acoustic Neuroma journey. I have found a sense of humor to be invaluable. Remembering to not take myself so seriously really helps me accept who I am. I will share some of my favorite ridiculous moments. Continue reading
-
SolaceShield: A solution for wearing hats with a bone anchored hearing aid
I was so excited to try out this product that makes it possible to wear a bone anchored hearing aid and a winter hat together. I found that SolaceShield significantly improved my winter recreation experience. Continue reading
-
Too Young for Health Problems
I have frequently struggled with being misunderstood as a young person with health issues. It can be really challenging to be met with disbelief when you are in the midst of a health crisis. Have you had this experience, too? Continue reading
-
Happy Hearing Podcast: Acoustic Neuroma and Single Sided Deafness
I am honored to have been a guest on the Happy Hearing Podcast. Check out this episode where I discuss my acoustic neuroma diagnosis, unilateral hearing loss, the importance of community, and fighting hearing loss stigma. Continue reading
-
Tinnitus Stories
I love to share stories on this blog, and I don’t have a lot of in-depth experience with tinnitus, so I asked others who struggle with tinnitus to share their stories. Four different wonderful souls got in touch regarding their tinnitus experience. Continue reading
-
Please Don’t Do This When Speaking to Someone with Hearing Loss
If you have never experienced hearing loss, it can be hard to know how to communicate successfully with someone who is hard of hearing. Here is a list of communication faux pas to avoid when talking to someone with hearing loss. Continue reading
-
NK’s Radiation Research Experience
This is NK’s story of researching their options for radiation for an acoustic neuroma brain tumor. NK shares their tips and tools, as well as specific information that is useful in the decision making process. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
Recent Posts
BLOG TOPICS
acoustic neuroma advocacy baha balance balance-problems bone-anchored-hearing-device bone anchored hearing aid brain brain-surgery brain-tumor community deaf deafness disabilities disability disabilityawareness flying gammaknife hard of hearing healing health hearing hearing-aids hearing-loss hearing accessibility hearingaidpride hearingaidsarecool hearingaidsempowerme hearing fatigue hearing loss invisible-disability listening fatigue mental-health oticon pain radiation recovery single sided deaf single sided deafness ssd surgery theater tumor unilateral hearing loss vestibular schwannoma
The "Lucky" Brain Tumor 