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Alcohol After Brain Surgery
The experience of imbibing alcohol after brain surgery can be different or very similar to life before the surgery. While many people can easily enjoy alcohol, others struggle with headaches, tinnitus, and dehydration. How does alcohol feel in your life? Continue reading
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AirPods as Hearing Aids for Single Sided Deafness
The Airpods Pro 2 hearing aid functionality is the best non-prescription solution I have found for background noise. The hearing aid functionality does not have sound rerouting functionality. It does not pick up sound on the deaf side and send it to the hearing side. The hearing aid functionality does include useful hearing protection. Continue reading
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Life with Pain
I have really found that my relationship to pain is that pain diminishes me. It takes a large chunk out of my capacity to do life. Pain eats up my energy. It slows me and dims my internal light. Continue reading
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Sounds I Love and Hate
Between the complexities introduced by my bone anchored hearing aid as well as having only one functional ear, I have found many noises I like and dislike. What are some of your most and least favorite sounds? Continue reading
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Invisible Disability
It’s invisible disability week. I have often felt that the fact that my disabilities are invisible is a double-edged sword. On the one hand, I have the choice to disclose. On the other hand, people literally never assume I have a disability. Continue reading
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Brain Surgery and Hair
There are a ton of challenges after brain surgery, and worrying your appearance isn’t “you” just makes everything harder. So let’s talk about brain surgery and hair. Continue reading
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Bone Anchored Hearing Aid- My Stats
My recent audiology appointment really demonstrated the huge amount of assistance the baha gives me. I have always said it is not like having 2 working ears, but it is a lot better than one. By the numbers, it is a solid ear and a half. Continue reading
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Living in the Dichotomy of Doing Well but Also Things are Hard
I have frequently had the disconnect of doing well but also being in a really difficult place, all at the same time. It was very surreal to find out I had a brain tumor when I felt fine and the only symptom I was really experiencing was hearing loss. Continue reading
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I Can’t Hear When I am Tired
Because tuning things out is a necessary survival skill to not get completely overwhelmed by auditory stimulation, it seems that after a certain level of tiredness, my brain just checks out on its own without consulting me. Continue reading
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Scanxiety
It is totally normal to feel heightened anxiety around a scan. Everyone worries a scan may mean getting bad news. I have a tool belt for getting through scan anxiety. I’d love to hear how you navigate that stress. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
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The "Lucky" Brain Tumor 