acoustic neuroma
-
Nikita’s Story: Living With an Acoustic Neuroma
This is Nikita’s story of life with an acoustic neuroma. One day, the sound changed and that set off a series of huge alterations in her life. Continue reading
-
The Challenge of Multitasking
It can be so tempting to multitask, however, doing so many things at once can be draining. Add in hearing loss and balance issues, and the cost to multitask can well outweigh the time savings. Continue reading
-
Self Advocacy is Exhausting
Self advocacy can be grueling but its importance cannot be overstated. I hope this encourages you to keep on putting in the hard work to be your own advocate. Continue reading
-
New Treatment Clinical Trial for Acoustic Neuromas
There is currently a clinical trial for a new treatment for vestubular schwannoma brain tumors. This treatment utilizes gene therapy. They are researching if it improves hearing and/or shrinks tumors. Continue reading
-
Ponto Bone Anchored Hearing Device Testimonial
This video explains what I love about my Ponto bone anchored hearing device, and why I chose this hearing device. Continue reading
-
Parenting and Brain Surgery Recovery
While multitasking brain surgery recovery and parenting is no small feat, it is possible. I found I benefited from my child’s presence and she also learned positive life lessons from my experience. Continue reading
-
The Gift of Not Having to Converse
As a working mom, my life is chock full of chatting and talking. I have learned to appreciate those moments where I can bask in a loved one’s presence and skip the talking. Continue reading
-
Situations Where I Use a Remote Microphone
Once I learned about how remote microphones could be used with my bone anchored hearing aid to make hard to hear situations easier, I knew that I wanted one. In the nine months I have been using a remote microphone I have found more and more situations where it is helpful. Continue reading
-
Doctor Appointments with Hearing Loss: Recording Visits
I find recording important doctor visits extremely helpful. It cuts down the stress of having to catch and remember every single word, which can be extremely challenging with hearing loss. Health is too important to play the fill in the blank game. Continue reading
-
Living in Uncertainty
Throughout my brain tumor journey, I have struggled with uncertainty. As much as I would like guarantees, they just don’t exist. My mindset to handle uncertainty has changed, as I have realized my thoughts are what I can control. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
The "Lucky" Brain Tumor 