-
Podcast Episode 9: Betty’s Story

Betty has an incredible acoustic neuroma story. She found her tumor through her dental concerns. She proceeded to have radiation for her 2.2 cm tumor and retain all her hearing, which was very important for her career as a musician. Continue reading
-
My Hearing Loss Makes Me a Better Conversation Partner

While this may seem counterintuitive, I truly believe I am a better conversation partner since I lost all my hearing in one ear. Continue reading
-
Representation Matters: Disability Pride Month

Holding my Disability Pride flag high, I am celebrating this Disability Pride month by focusing on the importance of representation. Continue reading
-
Hearing Loss and Hypervigilance

I definitely find that left unchecked I will slip from being vigilant about my hearing loss to hypervigilance. Do you also struggle with hypervigilance? Continue reading
-
Podcast Episode 8: Kim’s Story

In this episode Kim shares about her complicated treatment journey for her acoustic neuroma. Kim had a larger tumor, some unusual complications, and experienced regrowth of her tumor after surgery. Despite all this, Kim’s positive energy really shines through as she describes navigating all of these challenges. Continue reading
-
My CSF Leak Story (Cerebrospinal Fluid Leak)

I experienced a CSF leak in the days after my acoustic neuroma brain tumor surgery. Content warning- it was a traumatic experience for me. Continue reading
-
Hearing Loss When You are the Boss

Leadership is all about communication. Hearing loss creates a disruption in communication. It’s been an interesting journey, learning how to cope with hearing loss as the boss. Continue reading
-
Grocery Shopping is a Balance Workout

It’s common to struggle with vestibular issues in grocery stores if you have an acoustic neuroma (or after treatment for an acoustic neuroma) Have you wondered why a supermarket is so hard on your balance? Continue reading
-
Android Phone Hearing Accessibility Features

Many people are unaware how many useful hearing tools are built right into their phones. This is a guide of some Android hearing accessibility features and how I use them. Continue reading
-
Podcast Episode 7: Sean and Chris

In this episode, I get to meet Sean Wolfe, the artist known as @salvobeta, and Chris Eichenseer of @SomeoddpilotRecords. These musicians and long-time friends were both diagnosed with a rare brain tumor called an acoustic neuroma that took all their hearing in one ear. Contrary to what you may expect, this experience has only strengthened… Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
Recent Posts
BLOG TOPICS
accommodations acoustic neuroma advocacy baha balance balance-issues balance-problems bone-anchored-hearing-device bone anchored hearing aid brain brain-surgery brain-tumor community deaf deafness disabilities disability disabilityawareness facial paralysis flying hard of hearing healing health hearing hearing-aids hearing-loss hearing accessibility hearingaidpride hearingaidsempowerme hearing fatigue hearing loss invisible-disability listening fatigue mental-health oticon podcast recovery single sided deaf single sided deafness ssd surgery theater tumor unilateral hearing loss vestibular schwannoma
