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Literally Going Gray in May: Gray Hair and Brain Surgery
Gray May brings awareness to brain tumors and those impacted by them. Sharing my story of graying hair from my brain surgery seems an appropriate way to celebrate this month. Continue reading
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Ear Plugs vs AirPods for Hearing Protection
Hearing protection is incredibly important, and I have found it critical for my hearing loss life to find options that meet my needs. I have used both ear plugs and AirPods Pro 2 for hearing protection, and I wanted to share my likes and dislikes for each system. Continue reading
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Podcast Episode 6: DJ’s Story
In this episode DJ talks candidly about his retrosigmoid surgery for his acoustic neuroma as well as the physical and mental repercussions. DJ did lose all his hearing in the affected ear and experienced facial paralysis. He has wonderful insight into his emotions and thoughts throughout the process as well as tools that helped him… Continue reading
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Places I Have Found Community Online
Navigating an acoustic neuroma or hearing loss can be overwhelming. I have heard from so many people how much it helps to connect with folks who understand and share their experiences. I wanted to compile a list of some of my favorite spaces on the internet to feel seen, find tools, and connect. Continue reading
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Reframing Anxious Thoughts Possible Regrowth of a Brain Tumor
Receiving a brain tumor diagnosis is a traumatic experience. It’s terrifying to hear you have something growing in your brain. Everyone struggles with anxiety to some extent in that situation. It makes sense that your fight or flight response gets activated. Each person is going to have their own individual worries, but everyone definitely feels… Continue reading
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Hearing Accommodations for a Novel Experience: A Case Study
Asking for accommodations can be overwhelming. Here I break down a recent experience I had attending an event that was completely new to me. The accommodations truly made the event a success for me. Continue reading
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Podcast Episode 5: Maggie’s Story
Maggie decided on retrosigmoid surgery to treat her acoustic neuroma. Her hearing journey has been unusual, and she has struggled with balance issues as well as vision problems. Nonetheless, she is leading a very active life including canoeing and wood chopping. Continue reading
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Skin Care and Bone Anchored Hearing Devices
There are certain skincare measures that are important for the maintenance of an abutment style bone anchored hearing device. The skincare seems to daunt people at times, but I have found it reasonably easy and successful. Continue reading
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Small but Annoying Acoustic Neuroma Side Effects
I want to recognize some of the smaller side effects that people with acoustic neuromas may cope with. Some of these may seem odd or be unexpected from what a doctor shares, but they are a part of folks’ stories. Continue reading
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Situations that are Challenging for Hearing with Only One Ear
It’s World Hearing Day! I wanted to shine a spotlight on how single sided deafness can be a challenging hearing loss by sharing locations where I struggle with my unilateral hearing. Continue reading
About Me
Emily was diagnosed with a brain tumor at age 27 and decided to make that experience worthwhile by paying it forward to other brain tumor warriors. She is passionate about supporting people and advocating for hearing assistance around motherhood and running a family business.
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The "Lucky" Brain Tumor 